Save the date

Call for Supporters

We are asking all scientific experts of all glycogen storage disease (GSD) types, companies involved in disease management and therapies, and patient groups to save the date (28-30 November 2013) and to contribute to the planning, organising and funding of the GSD Conference 2013. Please contact the organisers to indicate whether you support the idea, and what contributions you would be able to provide.

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Testimonials

20 May 2012

Benedikt Schoser

  "Treating patients with neuromuscular disorders for the past 20 years, combined command around enzyme replacement therapy became a role model for all so far untreatable...

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13 January 2012

Arnold Reuser

  "During the past 38 years that people like me have been studying Glycogen Storage Diseases, I have experienced how much it takes to reach a point that efforts and...

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17 May 2012

Iris Ferrecchia

  "I am grateful for the men and woman who have dedicated their lives to this rare disease. I am just as grateful to the families who have supported them. I owe...

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News

29 March 2012

Check the Downloads

Want to tell others about the conference? Looking for material for using it in your presentations? What about stuff for your newsletters or your website? Check the Download...

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27 March 2012

New Date for the Conference

To avoid conflicts with other events we had to postpone the conference by 8 weeks. Please save this new date: 28-30 November 2013. Everything else, such as the...

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28 February 2012

Scientific Advisory Committee Appointed

We proudly welcome 6 international experts to our Scientific Advisory Committee: Prof. Dr. med. Benedikt Schoser (Chair), Friedrich-Baur-Institut, Munich, Germany Prof. Dr....

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21 January 2012

Conference is announced on GSDnet

Kevin O'Donnell made this announcement on GSDnet: Biggest-ever GSD conference taking place in 2013 Exciting news from the IPA and the German GSD patient group! The world's biggest...

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11 January 2012

Read The First Newsletter: Call for Supporters

After several weeks of preparations and discussions the overall concept of the conference is clear enough to publish a draft schedule and, most important, a "Call for Supporters"....

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02 January 2012

International Symposium on Hepatic Glycogen Storage Diseases

This symposium is jointly organised by the University Lyon and the French GSD Association. It is scheduled for April 4-6, 2012, in Lyon, France. This symposium is to contribute to...

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18 December 2011

Newsletter Available

Effective from today, a newsletter is available. Do not miss any conference news: subscribe now on the front page!

17 December 2011

Conference Website Online

A preliminary version of the conference website was published today.

Newsletter Subscription

Countdown


Stay tuned and get involved!

Organised by...

Selbsthilfegruppe Glykogenose Deutschland e.V. - German GSD Patient Organisation
Selbsthilfegruppe Glykogenose Deutschland e. V.
(German GSD Patient Support Group)

Supporters

Asociación Española de Enfermos de Glucogenosis
Asociación Española de Enfermos de Glucogenosis

Association for Glycogen Storage Disease UK
Association for Glycogen Storage Disease UK

Association for Glycogen Storage Disease US
Association for Glycogen Storage Disease US

International Pompe Association
International Pompe Association

L’Association Francophone des Glycogénoses
L'Association Francophone des Glycogénoses

Scandinavian Association for Glycogen Storage Disease
Scandinavian Association for Glycogen Storage Disease

Become a Supporter

How to become a supporter?
Please click here or send a mail to webmaster@worldgsd.org. Please include your name and organisation and indicate what support you are willing to give. We need your feedback and ideas. Money is not our main issue.

Sponsors

(coming soon...)

Bronze Silver Gold Platinum Diamond

Donations

Name Amount  
Vitaflo Pharma GmbH Vitaflo Pharma GmbH, Germany 3000 €
Friedhelm Borniger, Germany 400 € (supported by TSV Bubach 1995 e.V. and Theatergruppe Bubach)