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We are asking all scientific experts of all glycogen storage disease (GSD) types, companies involved in disease management and therapies, and patient groups to save the date (28-30 November 2013) and to contribute to the planning, organising and funding of the GSD Conference 2013. Please contact the organisers to indicate whether you support the idea, and what contributions you would be able to provide. Read more... |
Benedikt Schoser
"Treating patients with neuromuscular disorders for the past 20 years, combined command around enzyme replacement therapy became a role model for all so far untreatable... Read more...
Arnold Reuser
"During the past 38 years that people like me have been studying Glycogen Storage Diseases, I have experienced how much it takes to reach a point that efforts and... Read more...
Iris Ferrecchia
"I am grateful for the men and woman who have dedicated their lives to this rare disease. I am just as grateful to the families who have supported them. I owe... Read more...
Check the Downloads
Want to tell others about the conference? Looking for material for using it in your presentations? What about stuff for your newsletters or your website? Check the Download...
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New Date for the Conference
To avoid conflicts with other events we had to postpone the conference by 8 weeks. Please save this new date: 28-30 November 2013. Everything else, such as the...
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Scientific Advisory Committee Appointed
We proudly welcome 6 international experts to our Scientific Advisory Committee: Prof. Dr. med. Benedikt Schoser (Chair), Friedrich-Baur-Institut, Munich, Germany Prof. Dr....
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Conference is announced on GSDnet
Kevin O'Donnell made this announcement on GSDnet: Biggest-ever GSD conference taking place in 2013 Exciting news from the IPA and the German GSD patient group! The world's biggest...
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Read The First Newsletter: Call for Supporters
After several weeks of preparations and discussions the overall concept of the conference is clear enough to publish a draft schedule and, most important, a "Call for Supporters"....
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International Symposium on Hepatic Glycogen Storage Diseases
This symposium is jointly organised by the University Lyon and the French GSD Association. It is scheduled for April 4-6, 2012, in Lyon, France. This symposium is to contribute to... Read more...
Newsletter Available
Effective from today, a newsletter is available. Do not miss any conference news: subscribe now on the front page!
Conference Website Online
A preliminary version of the conference website was published today.
Stay tuned and get involved!
Selbsthilfegruppe Glykogenose Deutschland e. V.
(German GSD Patient Support Group)
Asociación Española de Enfermos de Glucogenosis
Association for Glycogen Storage Disease UK
Association for Glycogen Storage Disease US
International Pompe Association
L'Association Francophone des Glycogénoses
Scandinavian Association for Glycogen Storage Disease
How to become a supporter?
Please click here or send a mail to webmaster@worldgsd.org. Please include your name and organisation and indicate what support you are willing to give. We need your feedback and ideas. Money is not our main issue.
