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Booking of Sightseeing Tours is Open

Heidelberg is a good place to spend a day or two after the conference. Enjoy one of our sightseeing tours (Saturday and Sunday afternoon) to see the famous Old Town and the Castle.... Read more

Registration Is Open Until 31 July 2013

Pre-registration has ended today, and a payment link for the conference fee is available now. Registration is now open until 31 July 2013 based on availability of free spaces. Plea... Read more

Celebrate Thanksgiving with the GSD Community

To the United States GSD Community: As a Pompe patient, AMDA President, IPA Vice-Chair, and United States resident I would like to address the fact that the 2013 World GSD Confere... Read more

Donors wanted!

We are happy and grateful that the conference is financially supported by sponsors and donors but we still need some more money to be able to provide travel grants. Even if you can... Read more

Contribute to the patient-focused part of the program

Now is the time for patients and patient associations to think of how you can contribute to the conference. The attendance of patients makes this conference a special one, add... Read more

Book Your Space in the Tabletop Exhibition

We are offering spaces in a tabletop exhibition. Tabletops are free for holders of sponsorship packages and patient associations, all other exhibitors pay a fee of €500. The exhibi... Read more

1/40,000 - A Photo Project on Display at the Conference

The worldwide average incidence of Pompe disease (GSD type II) is approximately 1 in 40,000 live births. Hence, there is only little chance for average people to meet a person with... Read more

Dates & Deadlines

21 April: Abstract Submission - submissions are possible even past the deadline but may not be considered for oral presentation

31 July: Online Registration

Newsletter Subscription

Testimonials

13 January 2012

Arnold Reuser

  "During the past 38 years that people like me have been studying Glycogen Storage Diseases, I have experienced how much it takes to reach a point that efforts and investments...

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29 May 2012

Tiffany House

"As the President of the Acid Maltase Deficiency Association (AMDA), the Vice-Chair of the International Pompe Association (IPA) and a Pompe patient since I was 12 I have...

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08 July 2012

Allyson Lock

  "As a patient since 2010 I have found great hope and optimism from communicating with other Pompe patients and the families who are also affected by this disease. I have...

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20 May 2012

Benedikt Schoser

  "Treating patients with neuromuscular disorders for the past 20 years and joined forces around enzyme replacement therapy became a role model for all so far untreatable...

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17 May 2012

Iris Ferrecchia

  "I am grateful for the men and woman who have dedicated their lives to this rare disease. I am just as grateful to the families who have supported them. I owe...

Read more...

Organised by...

Selbsthilfegruppe Glykogenose Deutschland e.V. - German GSD Patient Organisation
Selbsthilfegruppe Glykogenose Deutschland e. V.
(German GSD Patient Support Group)

in collaboration with
Friedrich-Baur-Institut /
Ludwig-Maximilians University,
Munich, Germany

Donations & Payments

Sponsors

Sponsors listed here have booked a sponsorship package. Check our Sponsorship Packages.

Diamond
 
 

 

Platinum
 
 

 

Gold
 
 

 

Silver
 
 

 

Bronze
 
 

 

Coffee
Breaks
 

 

Patient
Travel
Grants

genzyme logo

Genzyme Corporation
vitaflo logo

Vitaflo Pharma GmbH


amicus logo

Amicus Therapeutics
biomarin logo

BioMarin Europe Ltd



oxyrane logo

Oxyrane
1 available
(including welcome reception on Thursday)
available available available 4 available available

Donations

Name

 

Amount

 

 

Deutsche Gesellschaft für Muskelkranke e.V. (DGM) 20000 €
Hertie-Stiftung, Germany 3000 €
Vitaflo Pharma GmbH, Germany 3000 €
CARISSA Einzelhandel- und Tankstellenservice
GmbH & Co.KG, Germany
1700 €
Friedhelm Borniger, Germany 400 € (supported by TSV Bubach 1995 e.V. and Theatergruppe Bubach)

 

DONATIONS are always welcome: Donate online!

 

Supporters

Acid Maltase Deficiency Association (AMDA)

Acid Maltase Deficiency Association

Asociación Española de Enfermos de Glucogenosis

Asociación Española de Enfermos de Glucogenosis

Association for Glycogen Storage Disease UK

Association for Glycogen Storage Disease UK

Association for Glycogen Storage Disease US

Association for Glycogen Storage Disease US

 Associazione Italiana Glicogenosi

Associazione Italiana Glicogenosi

 International Pompe Association

International Pompe Association

 L’Association Francophone des Glycogénoses

L'Association Francophone des Glycogénoses

 Scandinavian Association for Glycogen Storage Disease

Scandinavian Association for Glycogen Storage Disease